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Surgery/Symptoms

Printed From: Barrett's Support Forum
Category: Barrett's Support Forum
Forum Name: Barrett's Oesophagus
Forum Discription: Your Questions about Barrett's Oesophagus
URL: http://www.barrettscampaign.org.uk/forum//forum_posts.asp?TID=2
Printed Date: 21 Jul 2019 at 4:26am


Topic: Surgery/Symptoms
Posted By: Alemap
Subject: Surgery/Symptoms
Date Posted: 23 Dec 2006 at 1:38pm
Hello - Does anyone have experience of surgery for Barrett's symptoms?  I am due to see a consultant soon and wonder if anyone has any views.  I suffer with awful growling after eating and drinking (reflux) and a bloated feeling in the chest. 



Replies:
Posted By: Quill
Date Posted: 02 Jan 2007 at 10:29am
I am sorry that you have not received a reply to your original enquiry before now and can only blame myself for the lack of attention to this Forum bearing in mind the fact that it has only recently gone 'live' as well as the hectic Christmas period. My apologies.
I only found out that I had Barrett's after 'walking the boards' almost every night with indigestion whatever I ate and finally going to the Doctor who arranged for me to have an endoscopy which confirmed the position. I have been on 'pump prime inhibitors' since and largely trouble free. I hope you have your situation confirmed as soon as possible and appropriate treatment prescribed. I also hope that the information on this web site, including the 'lifestyle' issues are of help. Let us know how you get on.
Quill.


Posted By: Romanticdancer
Date Posted: 02 Jan 2007 at 1:12pm
Hi
 
Have you been told you are having surgery before confirmation that you have Barretts?
Most people have any endoscopy to check if you have Barretts and at what stage it is and then you will tend to be prescibed "pump prime inhitors"[PPIs].If you have not had an "Endoscopy I will be happy to give my views on the subject.
 


Posted By: Alemap
Date Posted: 07 Jan 2007 at 5:42pm
Hello, thanks for response.  I have had many, many endoscopies over the years and have a confirmed diagnosis of Barrett's and haetus hernia.  I take the pump prime inhibitors.  My initial diagnosis was some 15 years ago so surgery has been on the cards of a while now.  I have seen the consultant and my fears have been allayed.  I am now on the waiting list but would like to hear from others who may have undergone surgery.


Posted By: Quill
Date Posted: 08 Jan 2007 at 9:24am
I am pleased that you have clearly had a constructive session with your medical professionals and hope all goes well. I will see if I can locate someone who has had surgery and is willing to share their experience with you.


Posted By: Alemap
Date Posted: 08 Jan 2007 at 6:18pm
Thanks that's great.


Posted By: Romanticdancer
Date Posted: 10 Jan 2007 at 11:33am
Hi
Have you considered becoming a Member of PROBE by pressing "Join PROBE" or you can "contact PROBE"  Most of the Members have Barretts and some have had operations and other procedures which maybe simular to yours. Best of luck.


Posted By: alleggerita
Date Posted: 13 Jan 2007 at 5:38am
I had just like to know, if I had been having stomach acid reflux for 2 times but in a short span of time like about one and a half months, shall I just take the medicine the doctor gave me and let nature take its course or shall I do a scope instead? Thanks in advance to anyone who answers me. Smile


Posted By: Quill
Date Posted: 13 Jan 2007 at 9:41am
Thanks for posting your question. You should appreciate that this is a forum generally frequented by 'patients'. It appears that your question should really be directed to your GP as he/she would be the best one to go through the pros and cons so far as your particular circumstances are concerned


Posted By: REFLUXER
Date Posted: 07 Feb 2007 at 5:49pm
Hi is it Anti reflux surgery you are waiting to have. If it is and you would like to know more please let me know. I recently underwent the op. in Nov.


Posted By: Alemap
Date Posted: 11 Feb 2007 at 5:36pm
Hi, thanks for the response.   The operation is called "fundoplication" where the top part of the stomach is wrapped around the oesophagus and stitched in place.  I would be interested to know how you have got on with it if this is the same surgery.  How quickly does the hearburn cease?  Any complications?


Posted By: REFLUXER
Date Posted: 12 Feb 2007 at 8:51am
Yes this is the surgery I have had, unfortunately for me it has not worked and within 3 weeks of the operation I had the reflux and heartburn back. On the second Endoscopy to see if the wrap had come undone they told me I have baretts, I am just about to go to my doctors to get the results although they already told me that the wrap was still in place, which is bitter sweet news for me.. You may be one of the 75% where it will work, I really hope so. Would you mind telling me more about yourself and how long you have suffered and maybe even your age, I am 56, and have suffered now for just over two years, although have always suffered indigestion problems for as long as I can remember.. Dont worry about the op, i was back at work after two weeks.


Posted By: Graham
Date Posted: 14 Feb 2007 at 2:02pm

Hello People

 

Very recently I have been diagnosed with Barrett’s following a biopsy taken last month via an endoscopy examination.  I have a 30 year plus medical history of gastric problems and to include oesophageal reflux. Over the years I have had 3 surgical procedures performed to resolve my gastric problems, Pyloric Dilation & Vagotomy, Gastroenterostomy & Vagotomy and not forgetting Angelchik prosthesis fitted to my oesophagus at the cardiac end (stomach).

 

I have also been put on drugs such as Tagamet and Zantac….neither the drugs or surgical procedures really worked. In fact I felt worse after the surgery. Since being diagnosed with Barrett’s I have been put on Omeprazole, and I must admit I feel much better now than I have done for a long time, yet I still get gastric reflux. Personally I think most of my gastric problems where caused by the volume of surgery I have had, that is my opinion and perhaps not shared by health professionals.

 

To conclude, I think Omeprazole does a good job.



Posted By: Alemap
Date Posted: 23 Feb 2007 at 5:04pm
Hello, thanks for that.  I am 54 years old, female, and have been on medication for reflux for the past 14 years.  I have taken 30mg of Lansoprazole for many years but that was increased to 60mg (one morning and one night).  I underwent a two year clinical study the condition was first diagnosed after having the scope which showed that I have Barett's, a hiatus hernia along with the severe reflux.  I have been having scopes ever since and have had about 16 altogether.  I am now to have them about every 18months to make sure the Barret's cells don't "change".
 
After all these years of taking tablets and pushing more and more Gaviscon down my throat through the night, I made enquiries about the surgery and am now on the list.  I have been reassured that I could be a lot better afterwards, though not to expect perfect!  I recently underwent a ph test, where I had a tube down through one nostril into the stomach for 24 hours, to check acid levels prior to having the surgery.  Not pleasant but certainly not painful. 
 
I am tired of sitting in meetings (part of my job) and "growling" after I have anything to eat or drink.  Water gives me hiccups! By the end of the day I often feel quite bloated in the upper chest as I tend to hold my breath to try and stop myself growling.  It isn't too bad when I am with people I know but it is embarrasing when among strangers.
 
I am sorry your surgery didn't work out.  Is there any more that can be done or are you back on t he pills.
 
 


Posted By: blessedtobehere
Date Posted: 25 Feb 2007 at 12:28am
hello,
my name is wilma and i had acid reflux since chldhood and tried all the usual remedies fom chemist then for many years prescribed various tablets to no avail. I knew something more serious was going on and fond out about barretts on the internet and persuadd my doctor to send me for a scope. I didnt have sedation (yuck) and was told i had barretts with high grade dysplasia and they took biopsies.my medication was changed to proton pump inhibitors which helped a little but with a hiatus hernia i was still struggling with bile and eventually serious chest pains and acid which felt as though someone had poisened me...i would dance with the pain. as i was on surveillance endoscopies i had another scope one year later and this showed cancer cells.
Everything happened very quickly and i had to go for more scopes..EUS and Zillix then Cat Scan and fine needle biopsy. I was then told my best chance would be surgery. This all seemed to be happening very fast and when the oncology nurse specialist explained what to expect it all hit me and i couldnt stop shaking as my husband was asking what it would be like for my family.
I had an oesophago-gastrectomy (removal of most of the gullet and most of the stomach) on November 10th 2005 and i can only say it was the most horrific thing. surgery took 9hrs and the whole experience was very painful and I lost almost 5 stone in weight. eating is a problem now and i have to eat very small amounts and eat all through the day to maintain my weight. I am still off work as i have had some complications which means i still take morphine tablets (oxycontin and oxynorm) as well as amitryptaline and also acid prevention treatment. I can remember the first time i saw the scars and felt so ugly. i have  a rooftop incision on my abdomen and also one from just under my right breast an around to my back and up to my shoulder.
it is a difficult operation and recovery is slow but i can do most things and lets face it......at least I am here.Would i recommend surgery? absolutely! hard going and you will need support from everyone for several weeks and be off work for months. i am fortunate to have a lot of christian friends and workmates at Wesley Owen Books and Music store who have helped me in a million ways (thanks you guys). there is support on line at lots of places. all the best. from a scottish lady (49yrs yesterday)


Posted By: Davidj
Date Posted: 06 Mar 2007 at 12:15pm
Smile Hi Wilma
I had surgery 3 years last September and I can only say things do get better, I was lucky, thank God, that I was picked up early, Barrett's being the early warning system.  I enjoy a full life and now can manage a nearly full small dinner, if I don't have starters etc. and come back for pudding an hour later.  I am now doing all the things I did before, except I have to rest for an hour after eating anything more than a snack, and I feel uncomfortable bending down, but I cycle and have just come back from a weeks skiing, and I am back at work full time.  So my message is that surgery doesn't have to meen the end of all activities it just meens that we have to adapt a little.  Good luck.
I also urge everyone to join us at the AGM if you can, there will be some very interesting speakers and if we can save anyone from having to go through surgery then it will be well worth the effort.
 


Posted By: Gerry
Date Posted: 17 Mar 2007 at 10:42pm
Yes, I have had surgery (oesophagectomy) for Barrett's 5 years ago and I am absolutely fine. If you want to talk my number is 01264 359648
 
Gerry


Posted By: Alemap
Date Posted: 05 May 2007 at 6:09pm
Hello Everyone
 
I now have a date for my surgery - 17 May 2007.  I have to phone on the morning of the admittance to check there is still a bed for me as the hospital take emergencies so cannot guarantee a bed.  I hope it all goes ahead as it would be quite difficult to cope with the let down.
 
I am to have the Nissen Fundoplication where the top of the stomach will be wrapped around the oesophagus.  There is a site on t'Internet that show the operation and I made the silly mistake of taking a peep!  Yuck. 
 
Once it has been done and I am fighting fit again I shall let you all know what the results are like.
 
Alemap 


Posted By: Alemap
Date Posted: 05 May 2007 at 6:09pm
Smile


Posted By: REFLUXER
Date Posted: 07 May 2007 at 11:02am
hi, so you have your date for surgery. I wish you all the luck in the world, if you remember mine hasnot worked.
This does not mean yours will not. Im still in the throws of whether it has come undone or not, one says it has one says it hasnt. But either way, its not working.
No one seems to be mentioning this baretts to me. I am waiting for a follow up appointment from the last barium exray, which was 11th April.. Take their time dont they.
And whats in stall for me i dont know. I cant seem to stop this blessed reflux no matter what i do, but the heartburn has been relieved slightly with the drugs.
Yes I am back on all the drugs., all of them.
As I said dont worry about the op, discomfort for a few days only. my op on monday, home by wednesday. But all he things they told me to expect, like not being able to swallow lumpy food, belch, etc, has not happened. the only thing ive noticed is i cant eat as much, therefore i have lost weight, but also I keep having diaroeah from the drugs and thats also contributing to the weight loss.
Hope all goes well.


Posted By: Alemap
Date Posted: 22 May 2007 at 4:56pm
Hello Everyone
I have just undergone the Fundoplication operation and, though it is early days, all seems well.  I went into hospital on Thursday 17th May and came out on Sunday 20 May with it all done and dusted! 
 
I was extremely nervous but had no need to be.  There is no pain, only some slight discomfort around my abdomen where there are five little holes and a few staples.  The staples come out one week after the operation.  My diet needs to be soft for a few weeks and consists mainly of soup, soft potato, gravy, ice cream, youghurt, rice puddings etc.  Small amouts and often. 
 
I would recommend this to anyone who suffered the gross acid reflux that I have endured for 20 years or more.  I had my operation at the Royal Hallersham Hospital in Sheffield and I can't praise them enough.  They explained every detail to me and answered any questions thoroughly.  So far, so good.
 
Please let me know if you want to know more about the surgery from a patient's point of view.


Posted By: chrisrob
Date Posted: 22 May 2007 at 9:17pm
Hi Pamela,
I'm glad your operation has gone so well. Thanks for your account: it's given me fresh hope.

Eight years ago it was suggested I had the open Nissen Fundoplication and I was too much of a coward and, with my GP's help, managed the condition with medicines. But the laprascopic technique wasn't so widely available then!

I've got to wait a few more weeks to be told officially I have Barrett's. (I know because I wasn't properly sedated on the last scope and overheard everything.) I'm hoping they offer me the laprascopic fundoplication you had.

All the best and I hope you're as good as new soon.

Chris


Posted By: Alemap
Date Posted: 15 Jun 2007 at 11:03am

Hello Fellow Sufferers!

Thanks for your good wishes for my speedy recovery. 
 
I added a post just a few days after my "Nissen Fundoplication" surgery and thought that anyone waiting to have, or wondering about, this surgery may appreciate an update about my experience.
 
I am now at the four weeks post operative stage and I am extremely pleased to report that all is well.  There is still some slight heartburn, which I shall discuss with the consultant when I go for my post op check, but it is nothing remotely like the pain I suffered prior to surgery.  Having suffered reflux for so many years, the feelings I had were "normal" for me but now I realise just how much discomfort I was in all the time!   I can't believe I put up with all that pain for so long.
 
I am still eating small amounts of food on a regular basis, but that is a small price to pay.
 
I think the best way to convince anyone who is nervous about the surgery is to say that the discomfort I felt before the operation was far worse than any surgical discomfort I felt.  There is some very slight tenderness of the abdomen after the operation but that has been a thousand times easier to stand that the constant reflux and heartburn that I was feeling before.
 
If you are offered this operation my advice would be to accept the offer and stop the suffering.  For anyone who hasn't had the offer of surgery made to them, then ask the question of your Doctor and see if you too can be helped by this procedure.
 
Let me know if you would like more information.  I shall be pleased to support anyone who contacts me.
 
Best wishes.  Pam


Posted By: REFLUXER
Date Posted: 21 Aug 2007 at 7:18pm
Hi Halemap, Im so glad your surgery went well.
If you remember mine hasnt worked and I am about to go to the hospital on Friday 24th August for the last results of the Ph test. I had my operation last Nov and 9 months down the line nothing has changed. My depression is getting worse...One doc thought it had come undone, then an endoscopy supposedly showed that it hadnt, then another doctor thought half was undone, another barium swallow, supposedly showed that it was in place. Im at my wits end here, Ive just undergone a PH test, and I pray that when I go on Friday this shows them that the acid and relux and heartburn are still very much present.... If they tell me these tests were normal like the last two, then they might as well put me down because this misery I am living which they call life is not worth it to me. This last test might show that I have Bile reflux now, I should know Friday. But this is an added worry, because I havent heard of anyone on here having Bile reflux, as this comes from your Liver and should be present in the Duodenal.
GOD HELP ME.............I am in tears writing this...


Posted By: REFLUXER
Date Posted: 21 Aug 2007 at 7:19pm

this is me.....A normal day for me.



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