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Newbie

Printed From: Barrett's Support Forum
Category: Barrett's Support Forum
Forum Name: General
Forum Discription: A place to just chat & introduce yourself
URL: http://www.barrettscampaign.org.uk/forum//forum_posts.asp?TID=1895
Printed Date: 19 Aug 2019 at 10:06am


Topic: Newbie
Posted By: scorcher
Subject: Newbie
Date Posted: 01 Feb 2018 at 11:01am
Hello. So glad I have discovered this site .Was diagnosed in September quite by chance as I was having endoscopy for something else. Further comprehensive endoscopy under a general in December and out patients appointment next week .Once again glad to be here.



Replies:
Posted By: chrisrob
Date Posted: 03 Feb 2018 at 2:36pm
You may find this guide: https://sites.google.com/site/barrettswessex/JOURNEY - "The Journey - from diagnosis to treatment" from a talk provided by one of our consultant gatroenterologists a few years ago, useful.

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http://www.barrettswessex.org.uk - www.barrettswessex.org.uk


Posted By: scorcher
Date Posted: 03 Feb 2018 at 3:02pm
Many thanks must say this site has calmed me down somewhat was certainly panicking.


Posted By: scorcher
Date Posted: 14 Feb 2018 at 5:20pm
My outpatient appointment went well .Have miplasia so a check up every three years I have been told. They are going to give me a colonoscopy as I am anemic had one about ten years ago and they found nothing it seems my anemia is some sort of genetic anomaly or at least it was last time.


Posted By: chrisrob
Date Posted: 14 Feb 2018 at 5:37pm
Hi. "Normal" Barrett's is metaplasia. It's if they ever find dysplasia, there is concern and you may have it removed (ablation).
Normal scoping intervals (depending on size, presentation, familial history, body build, age and sex) is 2 to 5 yearly and your next scope will probably show pretty much no change.

Many with Barrett's become anaemic. It may be through blood loss at an inflammation site or malabsorption of iron.

Hope all goes well.

Cheers
Chris

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http://www.barrettswessex.org.uk - www.barrettswessex.org.uk


Posted By: scorcher
Date Posted: 14 Feb 2018 at 5:43pm
Thanks still trying to educate myself about this condition so always good to hear views .Once again many thanks.


Posted By: scorcher
Date Posted: 14 Feb 2018 at 5:44pm
Told my consultant about this forum he seemd quite interested.


Posted By: chrisrob
Date Posted: 14 Feb 2018 at 6:21pm
Whereabouts are you?
We have been developing a https://sites.google.com/site/barrettsoesophagusuk/home - Barrett's Patient Support Network .
By June we hope to be covering the areas shown in red here:


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http://www.barrettswessex.org.uk - www.barrettswessex.org.uk


Posted By: scorcher
Date Posted: 14 Feb 2018 at 6:29pm
London


Posted By: chrisrob
Date Posted: 14 Feb 2018 at 6:37pm
There is a London patient support group which Barrett's Wessex helped start a few years ago. It is the only active Barrett's support group officially managed by a different charity (Heartburn Cancer UK).
Details of their group may be found http://www.heartburncanceruk.org/london.html - by clicking on this link.

The Kent group ( http://www.BarrettsKent.org.uk - www.BarrettsKent.org.uk ) we hope to establish in April will be based upon St.Thomas's hospital London since most Kent patients with Barrett's are referred there.

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http://www.barrettswessex.org.uk - www.barrettswessex.org.uk


Posted By: steveb8189
Date Posted: 15 Feb 2018 at 5:02pm
There seem to be a few of us in London. I was thinking of setting up a less formal session at a pub at some point. Any interest?


Posted By: scorcher
Date Posted: 16 Feb 2018 at 2:11pm
Yes could well be up for that .



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