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bobgil
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Quote bobgil Replybullet Topic: halo
    Posted: 12áSepá2012 at 5:04pm
Just a quick update.
I had the halo treatment, yesterday, for a 3cm segment of Barretts.
Initally, when I came round I felt sick, but this was more likely. due to sinus problems.
The over riding sensation is of really bad indegestion, which until the sedation wore off, was probably a 3 out of 10 pain rating, raising to a 5 out of 10 when I tried some soup. Ice cream and yogert are much better tolerated and take sips/small mouthfuls. I was on a liquid diet for 24 hours and I am now on a soft food diet.
Going to try some fish and mashed potato, later. I have been given some anti-sickness drugs and anti acid mixture/ pain killer (haven;t taken any 2 day, yet)> and the usuall PPI's. Got to say that by other people's experiences, I have got away very lightly. Also, given my age (52), I felt it was worth paying for this procedure. Not sure I would have done it if I was 20 years older.. Also, wanted to be able to control the barretts, not have the barret's controlling me. I'll keep you posted and answer any of your questions. Either via the forum or privately. Cheers. Bob
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chrisrob
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Quote chrisrob Replybullet Posted: 13áSepá2012 at 7:32am
All the best for a full recovery, Bob.
Chris
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bobgil
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Quote bobgil Replybullet Posted: 13áSepá2012 at 7:11pm
Thanks Chris.
Just a word of advice. If you have halo treatment privately and are prescribed antacid/Oxetaciane, get it on a private prescription, it is a 'special' and 'normal' G.P's won't prescribe it. I need to contact my Consultant, Tomorrow, to get some more.
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bobgil
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Quote bobgil Replybullet Posted: 14áSepá2012 at 1:55pm
3 days since Halo and still pretty painful, when eating.
Fish, mash potato,yogerts, drinks, cornflakes, milk are relatively ok. Tried some hot soup and that was a no go!  Think you just got to let pain be your guide.
Other than at real times, pretty much pain free. Walked for a couple of miles yesterday and got a fair bit to do today.
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edugi
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Quote edugi Replybullet Posted: 15áSepá2012 at 8:31am
Good morning comrades.

First of all sorry for my English, because I'm from Barcelona (spain)

I am in a situation very similar to yours, but I have 38 years and a 2,5 cm barrett without dysplasia. I have silent reflux because I have never suffered from heartburn.

My gastroenterologist told me to check every 2 years and I'm eating patterns according to detail.

In Spain, as in England, the Halo is made on HGD, but there are many private hospitals do obviously paying anyone.

I have very clear after reading much about it, that when the detection of barrett young people like me, is a question of time appears dysplasia, have a good chance (50%) than in the 30-40 years of life expectancy than you, appear dysplasia on your esophagous.

From here,
I think when you see the dysplasia, the Halo effect you are doing so under an alarm condition, it should not work, live thinking that dysplastic cells can evolve at any time. So I think now, we have no dysplasia, is the best time for Halo, because if it does not end up working, you are not in alarm and have time to fix it by many ways.

The problem I have is that currently, 4 specialists consulted, 3 have discouraged me make Halo, they determine that in my state of metaplasia, the risks involved in the Halo, are more harmful to the very situation we have. (Except a specialist who determined that the emotional side of the disease must be considered as a factor for the Halo).

So I do not understand is what are the feared side effects that prevent physicians do bet on Halo, but when I am willing to pay whatever it takes to do it ....

To you who raised you? Side effects that you raised? as you convinced? have enough of a session or will need it? after the halo, as and when they become endoscopic control?

thanks, here in Spain there is a patient organization (www.asenbar.com) we're all excited, because many people say that we must fight for the Halo is made on metaplasias, knowing that HGD cases that have been practiced to date have been a complete success.

Thank you very much and greetings from Spain des.

eduard

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bobgil
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Quote bobgil Replybullet Posted: 15áSepá2012 at 3:48pm
I think the main reason, that many specialists won't halo Barretts, with no dysplasia is that statistically, it is not very likely to develop into High grade dysplasia etc
However, there are other factors to consider, one is age. If I was 20 years older, I probably wouldn't have had it done. Also, you quite rightly cite the psychological effects of living with a chronic illness. I found this very stressful and I wanted to control the barretts not have the barretts controlling me.
The negatives are that it is expensive, in some people it leads to narrowing of the Oesophagus and is painful, for a few days post halo. The positives are that the specialist, thinks he has got 3cm in one go, so no more barrett's, less worry and hopefully less problems, in the future. Finally, everyone is different and it has too be an individual choice. bob
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bobgil
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Quote bobgil Replybullet Posted: 18áSepá2012 at 1:41pm
7 days post halo. Back to work, not experiencing any significant pain and probably around 80% healed.
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yvjs
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Quote yvjs Replybullet Posted: 26áSepá2012 at 4:07pm
is it allowed to ask where you had HALO ?
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bobgil
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Quote bobgil Replybullet Posted: 29áSepá2012 at 9:03am
Check you private message inbox. I have e-mailed you the details.
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Sandra W
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Quote Sandra W Replybullet Posted: 01áOctá2012 at 5:02pm
Hi Bob,
 
Pleased to hear you're doing well and eating quite well after your HALO, but hot foods will probably be a no-no for a while.  
 
I am seriously interested in this medication you were given.  I had HALO in March and was in agony afterwards.  Two weeks later, I contacted my HALO doctor and he suggested getting sucralfate (1g tds) and co-codamol from my GP.  Unfortunately, GP prescribed TABLETS (LOL!!!) and I was unable to swallow them.
 
I have recently been told to expect more HALO soon and I've been thinking about preparing for this by getting asking GP for a prescription for sucralfate suspension.  Now I've seen your post, I wonder if I might be better off getting the same stuff you had.  Any info you have on this would help.  My HALO is NHS, not private, so would I be able to get this antacid / Oxetaciane?  If so, any idea how much it would cost?
 
Thanks.  All the best,
 
Sandra.
 
 
 
 
 
 
E-mail: swilliams888@hotmail.co.uk
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