Barrett's Oesophagus
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bobby
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Quote bobby Replybullet Posted: 16 Jun 2012 at 10:20pm
PJ
I would still take the scope, I had three in six months and from scopes two to three the size of one of my areas had decreased by almost 1cm. Also they will take biopsies from the infected area, which is no bad thing.
 
Your initial posting said you liked a drink, as a retired rugby player my staple diet on a Saturday/Sunday was beer or lager, depending on the mood, since retiring from playing I took the same to numb the pain of not playing!! Cry
 
In January 2011 I had a BMI of 36, today my BMI is 26, my waist has gone from 42 to 34 and I have never felt as good in donkeys years!!
 
I can also empathise with you in terms of being "Not in a good emotional place" I think we all can say the same on this journey we find ourselves in, it's a natural human emotion. It's also the one place where I feel our health service could improve in supporting patients, not only those with Barrett's, who are having difficulty in dealing with what is happening to them.
 
 
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Sandra W
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Quote Sandra W Replybullet Posted: 17 Jun 2012 at 11:08am
Hi PJ,
 
If your consultant wants you to have another scope in 2 months' time, you should without hesitation accept this invitation.  Your specialist is doing his job thoroughly and wants to provide a high standard of care, and that is something for which you should be very thankful.  You are lucky to have a good and careful specialist - my advice is to make the most of your good fortune!
 
Maybe I'm cynical because of my own experience of the gastroenterologists in my own local area who, to put it bluntly, just couldn't be bothered.  The first consultant I saw didn't even do an OGD but simply discharged me with a diagnosis of Irritable Bowel Syndrome.  The second specialist couldn't identify the abnormalities photographed at endoscopy, and subsequently discharged me with the same diagnosis.  Fortunately for me, my GP then arranged an urgent referral to another hospital, where biopsies confirmed squamous cell dysplasia and Barrett's.  I am now in the process of having HALO treatment, after which I will be assessed for anti-reflux surgery.
 
As to your gallstones, which can cause very severe chest pain, my advice is to make sure that these are treated.  Don't be taken in by the popular misconception that gallstones are nothing more than a painful but harmless nuisance - nothing could be further from the truth. 
 
While these stones are a common problem and many patients come to no serious harm, there are also unfortunates like my late mother whose stones, having been left untreated for several years, eventually led to serious complications.  The post mortem report stated that cholelithiasis (gallstones) had caused empyema of gall bladder (accumulation of pus and infection), resulting in liver failure and septicaemia, the actual cause of death.  Dad and I were with Mum when she collapsed at home and died before the ambulance arrived.  Mum was just 73 - and that's no age at all these days.
 
If you have any questions about your repeat scope or any other aspects of your case, you should contact your consultant and ask - I'm sure he/she would be happy to explain.  Don't take risks - it just isn't worth it.  Accept any scopes and treatment you are offered, and be glad you have a consultant who cares.
 
Best wishes and Good Luck,
 
Sandra.
E-mail: swilliams888@hotmail.co.uk
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pjwebster
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Quote pjwebster Replybullet Posted: 18 Jun 2012 at 8:17am

Thanks for all your replies, the message I'm getting is that there is no such thing as too many scopes, so as and when I get my invitation for the second one I will accept.

 

Jeff – thanks for being understanding. What are the PH tests you mention?

 

Bobby – Thanks for sharing and well done for the weight loss, I know from experience how much work you must have put in to get to where you are now. I still have a way to go though I’ve reached some milestones, no alcohol for nearly 5 months (not something I’ve managed since I started drinking at 16), 15kg lighter (at least the same to go) and 3 “dress sizes” smaller as the wife tells her friends.

 

Sandra - I will request and appointment with the consultant to discuss exactly what is going on with the Oesophagitis and Barratt’s and also to discuss treatment options for the gallstones. I think I can put my Barrett’s down to my diet which for the past 25 years consisted mainly of high fat foods washed down with way too much alcohol and half a pack of antacids when the pain kept me up, it would probably be useful for them to know that this has been rectified and that I have also made other changes to help with reflux.

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jcombs99
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Quote jcombs99 Replybullet Posted: 18 Jun 2012 at 11:46am
24 Hour PH Test (easy and cheap test to do) .48 Hour BRAVO(ph) Test (costly because you can only do it correctly when you get a OGD) ...Ask your doctor for this before your next OGD and IF he says NO or "we only do them before fundos " CLAIM "I'm thinking about that too"...Take any test or anything they will do for you .Tests can be a good benchmark for down the road .I wish I had data from 20 years ago ..
   Doctors are TO quick to blame the patient for barretts ..No matter if you have the SO CALLED perfect diet or lifestyle you can still get barretts..MOST cases are from a BAD LOS or a HH ..Move FORWARD forget about the pass and learn on to work the NHS ..

GOOGLE THESE     They do a great job

HGD JEFF   

Edited by jcombs99 - 18 Jun 2012 at 12:38pm
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bobby
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Quote bobby Replybullet Posted: 18 Jun 2012 at 11:10pm

Pj..

Good choice made in taking any scope offered to you, to be honest I crap my pants every time I go for one but I accept I need to do it!!
 
On the weight loss, I found it pretty easy, I was told I was not giving myself the best opportunity of dying in old age so I bit the bullet and went on a strictly measured diet and light exercise programme! I weigh everything that we eat, yes I got the other half to join in too, I ended up putting 18 bags to the local charity shop (cancer related obviously) and the rest went to my 78 year old father, who has never been so well dressed!!! Big%20smile
 
I decided that once I got in from work that I/we would walk everywhere if we were out of an evening and go for a walk in the morning. I used to take my PPI's at 5.30 and then go back to sleep for an hour, I decided to take them and go for a walk for an hour instead, joined every 2nd day by Mrs Bob, It took me 5 months to drop 58 lbs and I think the last time I was this weight I was about 17! I spent nearly all my adult life trying to be as fit and heavy as I could to play rugby (15 1/2 - 16 stones), it took 1 month to rid myself of the excess baggage that had somehow ensconsed itself on me since retiring from playing and another four to get into a pair of trouser that I wore on my 40th birthday.
 
It's a long journey that each and every one of us, including our families and friends, are on. I can only say that once the realisation set in that I may not be around for much longer to enjoy their love and friendship if I continued living life the way I was. That was the kick up the rear end I required.
 
To be fair it hasn't really hurt anything except my bank balance for new clothes!!! Wink
 
 
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pjwebster
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Quote pjwebster Replybullet Posted: 10 Jul 2012 at 1:11pm
Hi all - I requested an appointment with the hospitals GE Consultant via my GP and this has come through. I basically wanted the opportunity to discuss what the plans are for monitoring my Barretts (now confirmed - no dysplasia or malignancy present) and to make sure they are aware of the factors contibuting to the chronic GERD & resulting Barretts and the lifestyle changes I have made in order to avoid / limit these from now on. I will also request the additional scope if they still feel this is warrented as acting on my instructions my GP requested that this be postponed if there were no actual underlying concerns over the initial diagnosis which it appears there were not.
 
As I don't know how many more opportunities I will have to discuss my case with the consultant I thought I would ask here if there are any questions I should be asking that I may not have thought of at my appointment, or further tests / proceedures that may not be offered as a matter of course that I could enquire about.
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