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mytube
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Quote mytube Replybullet Topic: Diet
    Posted: 02áJulá2011 at 9:14pm
The only symptoms I have are occasional awareness of mucous at the back of my throat and slight acid reflux, usually when I'm bending down. These seems to happen randomly, regardless of what I'm eating and drinking. I'm trying to mainly steer clear of orange juice, caffeine, alcohol etc,but not all the time.
Should the pantoprazole eliminate these sensations, or should I be taking gaviscon as well when I feel them? Given that my consultant doesn't want to see me for 2 years I still feel a bit at sea with this condition! Does the odd bit of reflux and mucous mean the Barretts is not under control and getting worse?
I would be interested in hearing about other people's diets. Do you rigorously avoid anything that gives you symptoms, or just accept that reflux and heartburn (which I've never had)are just part of Barretts and have to be put up with?
I still find it weird that I wasn't aware of any symptoms before the endoscopy

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chrisrob
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Quote chrisrob Replybullet Posted: 03áJulá2011 at 10:30am
Hello again, Mytube,

The symptoms you describe are typical but hopefully you'll be able to manage the condition better as you get used to the drug regimen.

The symptoms are of the acid reflux which gave you the Barrett's (which itself is asymptomatic).

Different people react differently to different foods You'll need to find out what works for you - which foods you can tolerate and which to avoid. You may try to keep a food diary to identify which are your problem foods.

I personally found I could tolerate red wine but not still water and sparkling water better than still water. Which seems to defy what many suggest.

Foodwise, the biggest no-no for me was pastry.

If you do find you're experiencing acid reflux then it is OK to use Gaviscon as well occasionally.

Have the headaches reduced since you were put on Pantoprazole?

It is normal for your specialist to only see you every two years unless he sees dysplastic changes which could possibly mean there was a slight chance of it developing into cancer.

There are many websites on the net that will attempt to tell you what to eat and what to avoid (including those who'll try and charge you just to tell you to eat apples) but you will be the best judge of what works for you.

The Barrett's Wessex site has some tips from a consultant gastroenterologist which may be worth looking at. There is also a book of recipes ("Cool Food") which have worked for others. But this isn't a sales pitch.

All the best

Chris
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mytube
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Quote mytube Replybullet Posted: 03áJulá2011 at 1:46pm
Thanks again Chris. Pantoprazole OK so far, just slight headaches some days and the odd lightheadedness.
The mucous and reflux, when I notice them, don't bother me much, so there's not much motivation to avoid foods that may cause them or to take gaviscon unless there is a good reason to. Just trying to work out whether avoiding trigger foods is purely for my day to day comfort or to aid any possible healing and/or avoid making the condition worse?
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jcombs99
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Quote jcombs99 Replybullet Posted: 03áJulá2011 at 3:47pm
My
   Make sure your slim so whats left of your LOS doesn't get pulled down by extra weight ..I gained like 10 lbs on vaction and was getting a little heartburn (lost it)..Like 10 years ago when I bent over I would get reflux sometimes that's not good ..Try not to bend at the waist that worked for me .. I learned to cook much better because of barretts ..ALL meats I cook to the lowest temp which I check (new lower guidelines by FDA)..I use to over cook then spice it up ,now it tastes much better, no spicies it's all lean no FAT..I use to eat out fast food but my cooking is great now so maybe 1x in 2 weeks instead of 6x..Spend some time on this and see what works. I don't like the 2 yr EGD but thats the way it is .Maybe check in 10 months and tell them you need one and see what happens..If you get time go to a meeting maybe you'll get a few new cheap ideas in person it harder online..By the way no one making any money on this stuff, i could do better by watching tv.... I drink orange juice BUT dilute it like 5 to one with water..

HGD JEFF

Edited by jcombs99 - 03áJulá2011 at 4:32pm
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mytube
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Quote mytube Replybullet Posted: 03áJulá2011 at 10:04pm
Thanks too Jeff, I'm gradually understanding more about this condition. You sound like you've come a long way and it's all working for you. The food thing is a bit confusing. Not sure what bit of a meal makes me feel a bit refluxy, and there are healthy foods that I love and it seems strange not to be encouraged to eat them, but watering down orange sounds sensible. I'm hoping that the latest meds I'm on won't give me sick headaches and gradually reduce the symptoms but I can see that avoiding certain foods seems to be something I'll just have to accept sadly
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LindaG
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Quote LindaG Replybullet Posted: 04áJulá2011 at 8:08am
Hi Mytube, my husband has silent reflux also. It is almost impossible to tell which foods are causing the problems, so we just go by the guidelines given to us by our doctor - low fat, no tomato products, no caffeine, no citrus fruits, no dairy, nothing spicy, no carbonated drinks, and we are careful with onions and garlic.  A pretty bland diet effectively.  We were also told no alcohol but he does have an occasional glass of red wine or gin & tonic.  The mucous collecting at the back of his throat has gotten much worse since taking high doses of  PPIs after his first HALO treatment. He has just had his 'touch up' HALO done, which has cleared the Barratt's completely, but since this he has found that pineapple, which he used to eat daily, and tinned salmon, gave him an immediate slight hearburn sensation which he never experienced before.  We found that quite strange.

The next procedure for him will be the Bravo 48hr PH test which will hopefully show us which foods/drinks are causing the problem (he does not have a Hiatus Hernia which is an obvious cause).  The PH test might be an option for you?

Edited by LindaG - 04áJulá2011 at 8:10am
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mytube
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Quote mytube Replybullet Posted: 04áJulá2011 at 3:03pm
Thanks LindaG

This is a very puzzling condition indeed. A few months ago I felt just fine, and now I have symptoms of Barretts and even more unpleasant - side effects of the meds.

There is a whole heap of contradictory stuff around on Barretts. I looked on the cool food link and was surprised to see a sample recipe that included peppers and cinnamon - which I thought were on the banned list!

Frankly living on a bland diet would take away one of life's great pleasures for me, so I'm going to have to put up with discomfort from time to time. No-one will tell me if this approach is dangerous however, and why.

Will ask my GP about the PH test next time I go. And can anyone have a HALO and is it a good idea?

I've always been a healthy eater, love cooking and growing food, (was) fit and well (I'm 62) not overweight and am not on any medication apart from the horrible PPIs. Grrrr am just angry now!

Anyway, hope your husband gets to the bottom of what foods he should REALLY avoid and feels much better as a result.

Kind regards
Mytube

PS oh and Jeff who wrote before - how do you find out where meetings are held? If there's one near me that sounds like a good idea.
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jcombs99
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Quote jcombs99 Replybullet Posted: 04áJulá2011 at 3:28pm
MY
Chrisrob runs that site look it up in his posts..I think your getting the deal on barretts.I'm sure you can take the tube there IF you have time .Barretts isn't a dearth sentence it's a word of warning..

Cheap Jeff

Edited by jcombs99 - 04áJulá2011 at 3:30pm
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LindaG
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Quote LindaG Replybullet Posted: 04áJulá2011 at 3:43pm
Sally, we certainly avoid cinnamon but occasionally eat green/red peppers (not chilli peppers though!).   We would have been considered 'healthy' eaters also and I loved to cook and try new things, but there is only so much you can do with bland food and it gets very boring. 

Personally, we don't want to do anything that causes discomfort as we feel that would be unwise.  We don't want the Barratt's to grow back again and develop in to something more sinister (oesophageal adenocarcinoma is in the family). 

The first PPI my husband was on made him feel rotten so it was changed to Nexium, which he is reasonably happy with for the moment.

As for HALO, you won't get that done on the NHS at present unless HGD is present.  We had to go private but we are confident we made the correct decision, basically to get rid of the Barratt's lining, thereby preventing it from getting any worse. One thing less to worry about!

Linda
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jcombs99
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Quote jcombs99 Replybullet Posted: 04áJulá2011 at 4:07pm
LindaG
      Your husband is a very lucky man to have a smart wife(I'm sure he planned it that way). I have two on my block who have done nothing to help them .That 48 Hr Bravo test is the best I ever took(But you need more)..You must take it under normal life which means PPI's ,Regular Food and the STRESS of work or life to get the right results.
I had two things I had to deal with when on the test and the meter went down to 2 PH , coffee(40oz)and others did nothing to the meter..

Take Care
Cheap HGD Jeff

Edited by jcombs99 - 04áJulá2011 at 5:16pm
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