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Themis
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Quote Themis Replybullet Topic: Newly Diagnosed
    Posted: 17 Aug 2009 at 12:03pm
Hi I have just been diagnosed with Barretts and am awaiting biopsy results - I am feeling quite frightened and as I am alone at the moment not sure whether to chase the Doc up for my biopsy results - having had reflux for the last 20 years and been taking Omeprazole 20mg and  sometimes Lanzoprazole to change I have always tried to come off the drugs and have had some long reflux free periods but eventually it has come back.  The sting in the tail for me is that I worked for the Company that invented Omeprazole and so knew all about reflux and the issues surrounding it and the long term safety studies - but hey ho - still have Barretts which is probably due to having a Hiatal Hernia - and weight gain.  I am 60 now and had colo-rectal cancer in 2000 for which I had an anterior re-section, chemo and a temporaty ileostomy - however I am now through that and all ok there - I am fit - I work out with a trainer 3 times a week - eat sensibly most of the time - do drink wine - and am pissed off about this - although as a glass half full person I should look on it as an opportunity to be monitored! I am trying to move to Mallorca to live but had my endoscope last Tuesday in Oxford - I am on my own currently and spending too much time looking on the internet and getting depressed - I have never joined a forum before but this one looks good and I just feel I need to touch base with reality!!!  some interesting comments and experiences on here so look forward to hearing from others in the same boat..
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AndyR
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Quote AndyR Replybullet Posted: 18 Aug 2009 at 8:26am
Hi Themis,

Welcome to our group, I know, not the best way to become part of the group.

I did the exact same thing as you and basically scared the crap out of myself by reading too much on the internet. It is a wonderful source of information, both good and bad. What I always tell myself is that I have to consider the source.

I am also on my own at the moment and I have to say it was difficult to deal with when I had no one to share my thoughts with. This group helped a lot especially as we all have the same thing. Also my close friends too. But I think it is a process that you must go through, I didn't want to beleive that this was happeneing to me. But it is and I must deal with it and move on.

I also found that over time I became less obsessed with finding out everything about it. Now I am more at peace with the whole thing. Bottom line, and this is something that was said to me, we will be monitored so if anything changes it will be picked up early. Early detection is key when it come to this kind of thing.

I am sure others will chime in with their support. Feel free to ask any questions.

Regards,

Andy
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Themis
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Quote Themis Replybullet Posted: 18 Aug 2009 at 9:12am
Thanks Andy - this really helps to know there is someone out there!  I think the internet is great but as you say you really have to be selective because you can go down a hole if not careful.  I am still waiting for the biopsy results - they take 10 days according to the specialist - and then I guess we have to see if there is any dysplasia. 
 
You are right that now we are being monitored and if you look at the stats Oesophageal cancer is on the increase and mose people never get checked until its too late - I know that my early diagnosis of colo-rectal cancer almost certainly saved my life - I went as soon as I had symptoms which were very mild and was seen in a matter of days and operate on within 10 days but even then the cancer had gone into the bowel wall -
 
 My point of raising this is that we are fortunate to have been diagnosed and subsequently to be monitored plus there seems to be a lot of new and less invasive treatments coming along - it is easy to get down and frightened in dark moments but it does help to be able to talk about this - hope you are well and thanks for replying!
 
Kind regards....Themis Smile
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oldjohn1
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Quote oldjohn1 Replybullet Posted: 18 Aug 2009 at 2:50pm
Hi, I was diagnosed with barretts in july 2007,following two endoscopies 4 months apart,was given lansoprazole in the first instance,within 3 months this had an adverse reaction,changed to esomeprazole 40mg this has been OK,the barrets is 4mm in total
(two tongues)it was quite a shock when the specialist explained it to me,the question of surgery was raised which I am OK about,my Doctor is not too keen on this? will see how things change.
This year I have started coming to terms with it all and hoping for a good result on my next endoscopy in July 2010.
I am new to the forum,  but reading the posts it seems that a lot of help is available.
 
Richard
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mikeg
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Quote mikeg Replybullet Posted: 19 Aug 2009 at 7:29am

Hi Richard,

I am in a similiar situation ,I have two 5mm tongues. 
 
However I was told that this is not a clear definition of Barretts, it was more likely to be an irregular z-line. 
 
I am intrested to know if you had anyother feedback such as,  dysplasia, globlet cells, intestinal metaplasia that makes you diagnosis more definite. I also read that you need many biopsies and an area of 5mm is not big enough to get sufficient samples.
 
Do you suffer from reflux, I do not and my finding was by accident.
 
Thank you for sharing this with me.
 
Mike
 


Edited by mikeg - 19 Aug 2009 at 6:51pm
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oldjohn1
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Quote oldjohn1 Replybullet Posted: 21 Aug 2009 at 9:12pm
Hi Mike,
I suffered reflux for 8 years,after my 6 monthly check after the first endoscopy, the specialist confirmed that I had barretts.
I have not had any other feedback as yet,should get my doctor to explain fully to me.
Each time I have had endoscopies biopsies have been taken.
Must pluck up the courage to find out.

Thanks for your reply.

Richard
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mikeg
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Quote mikeg Replybullet Posted: 24 Aug 2009 at 7:59pm

Thank you.Hi John,

 
As they say  sometimes a little knowledge is dangerous and prehaps that is where I am trying to understand my situation. 
 
As the chances of anything are developing are low we should be careful but not over the top worrying. Have you see this article
 
 
Regards
michael
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jcombs99
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Quote jcombs99 Replybullet Posted: 25 Aug 2009 at 3:29am
HI FOLKS
    
   Just talked to my doctor today Dr. Pruitt (Nashville TN. ) He said he's done over one thousand halos on people not bad . My sister read a Frobes story on him on 5/31/2008 (300 halos then) and I said thats the man I want . He will treat any ONE weather you have no dysplasia or HGD.
     Don't mean to scare anyone But that's not the deal here , he was saying for some reason he's getting a lot more cases like ME .That means you come in thinking you have no dysplasia but you have LGD OR HGD like I did .

TAKE CARE ,HGD JEFF

Edited by jcombs99 - 25 Aug 2009 at 4:25am
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