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Message Icon Event: Confused Newbie - Event Date: 12áMará2018 Post Reply Post New Topic
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Jill
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Quote Jill Replybullet Calendar Event: Confused Newbie
    Posted: 12áMará2018 at 2:43pm
Hello, I am new here so hope I am posting this in the right place. I was referred by GP to local Gastroenterology department because of unexplained weight loss. The gastroenterologist ordered an urgent gastroscopy, CT scan of chest, abdomen and pelvis, full panel of blood tests (and urine and stool tests). I had the gastroscopy and scan on 5th February. They took 6 biopsies. A nurse read the gastroscopy report to me afterwards, and gave me a leaflet on indigestion. It is now 5 weeks later. I am still awaiting an appointment date with the gastroenterologist. In the meantime, my GP has put me on Omeprazole, Peptac, and Ensure drinks because of the weight loss. She says that all my results have come back as normal. But I am concerned by the gastroscopy report. It states Barrett's Epithelium, Prague C40M40, hiatus hernia with sliding length of 4cm and erosive gastritis. I've been reading information on your site, and the C40M40 doesn't seem right. I have been told that if there was a problem the specialist would have called me back. Am I worrying about nothing? Thank you.
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chrisrob
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Quote chrisrob Replybullet Posted: 12áMará2018 at 3:30pm
Hi Jill and welcome to the forum.

I do hope all your tests determine the cause of your symptoms and you get appropriate treatment.

Your Prague classificatin does sound wrong: I imagine it should be C4M4 - that would indicate a 4 cm collar of Barrett's with the maximum length of any tongues as 4cm (ie no significant difference to the circumferential ring).
(40 cm would be longer than the distance from you stomach to your teeth!)
A 4 cm ring of Barrett's should normally have provided a minimum of 8 biopsy sites following the Seattle protocol of 4 biopsies quadrantically every 2 cm of suspected area.

Your 4cm hiatus hernia has obvioulsy permitted the reflux which carried the acid and bile into your oesophagus to initiate the protective formation of Barrett's cells.
Your erosive gastritis shows too much stomach acid has resided there too long. Your omeprazole should reduce the acid to permit the gastritis to heal in a few weeks and continue to protect your oesophagus.

Your biopsy results probably aren't ready yet. It can take weeks but they would normally have priortised anything they were particularly worried about. If those results do show anything untoward, like dysplasia or neoplastic changes showing possible progression towards cancer, they would let you know pretty quickly.

You may find this free encyclopaedia, Down With Acid, helpful.

All the best
Chris
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Tom1
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Quote Tom1 Replybullet Posted: 18áMará2018 at 10:12am
Getting mixed up with were I should be posting .Thank you for letting me join site got diagnosed with Barrett's and hiatus hernia last week after years of suffering with heartburn been taking 30mg of lansoprazol for about 5years I didn't know the consequences of having heartburn never ever been sent for a endoscopy till last Tuesday still waiting on results so am very anxious about that been a smoker and drinker and ate what was put in front of me my wife was always on at me but never listened so suppose only self to blame hey no is what it is once again thanks for letting me join
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chrisrob
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Quote chrisrob Replybullet Posted: 18áMará2018 at 11:07am
Hi Tom and welcome to the forum.

Don't worry too much about where you should post, it can be a bit confusing. A new post in the "Joining the Site" section explains.

Unfortunately your story is all too common, Most people don't appreciate the danger of persistent heartburn.
I also fell into this category. Both my parents suffered heartburn. My father ate Rennie like sweets (He died, when I was a young teen, from a heart attack - probably thought it was indigestion again.) and my mum used Cimetidine (the first of the H2 blockers.)

I had suffered reflux all my life and when I started getting acid as well, and raging heartburn every night, I also took Rennie. It wasn't until I passed a kidney stone (from too may chalky antacids) that I went to the doctor and discovered my Barrett's 24 years ago.

But Barrett's is not anything to be alarmed about. It is one of your body's ways of trying to protect you. We are undertstanding more about this every day as new research comes out. (Unfortunately most GPs don't have the time to read all the latest research and will often propagate ideas that have since been superceded.)
The Barrett's Wessex website has a News / Research page here with links to the abstracts of all the recent, relevant research.

Barrett's cells are formed from gastric stem cells in response to constant exposure of acid and bile refluxing - most frequently due to a hiatus hernia. (See the "Put Simply" chapter in the Down With Acid book.)
It's a permanent protection, a bit like armour plating, and for the vast majority of us will never change - and will not go away unless removed by ablation therapy if needed.

Barrett's cells are less sensitive than the normal oesophagus lining so those with Barrett's may not feel the pain as much and are more likely to ignore it. Unfortunately, too many won't then seek help until they develop other symptoms (of cancer) when it may be too late. Oesophageal cancer is virulent and rapid. If diagnosed at that stage, prognosis is usually just a matter of weeks.

Although there is that very small risk of it progressing to cancer, we are the lucky ones who have Barrett's and know it. We will receive medication that reduces the risks of progression and regular surveillance scopes every few years to check it's behaving itself. If any signs are ever seen of possible progression ("dysplasia"), it can be ablated to prevent that occurring.

We need to raise awareness that Persistent Heartburn shouldn't be ignored so others can be found before it's too late.

As far as food and drink are concerned, read the Food section in the Down With Acid book. You will hear so many telling you what to eat or to avoid and most of it is propagated myth.
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Tom1
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Quote Tom1 Replybullet Posted: 18áMará2018 at 11:42am
Hi Chrisrob thanks for reply the wheels seem to be falling of me the past few years always used to train,played a lot of football always went for drink afterwards when younger,drove articulated trucks for years all over Europe and uk so eating habits weren't the best so yes caught up with me now I guess so keep fingers crossed,legs crossed,see what the biopsy results are thanks again Chris onwards a and upward eh
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