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steelee
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Quote steelee Replybullet Posted: 30áOctá2017 at 12:35pm
Had 6th RFA last Monday and recovery has been much better,only mild pain and eating and drinking as normal couple of days after, have next session in 3 months and they are also talking about doing Argon plasma coagulation in addition. Sedation seemed to knock me out this time which was nice!!
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GrahamB
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Quote GrahamB Replybullet Posted: 11áJaná2018 at 11:03am
In for RFA III tomorrow. Always a slight sense of trepidation before hand. While I know that they will probably find a smaller segment which they will attack with the HALO again you always wonder if the time passed has allowed any progression. Will update post procedure.
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steveb8189
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Quote steveb8189 Replybullet Posted: 11áJaná2018 at 12:53pm
Best of luck Graham. What length were you down to before the last RFA?

Do they just target one specific area of a few cm each time? If so, where do they start?
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GrahamB
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Quote GrahamB Replybullet Posted: 11áJaná2018 at 1:39pm
Now you mention it, I have realised I have never asked about how they target session! I will tomorrow.

I started at C8M8 and was down to C4M6 before my last session. I have always assumed that blast the whole length but I suppose that doesn't make logical sense.

Consultant is saying (to my insurers) I will probably need up to three more sessions including tomorrow.
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pylorius
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Quote pylorius Replybullet Posted: 11áJaná2018 at 3:33pm
Hi Graham

All the best and hope it goes well for you.

Keep us updated

Regards

Pylorius
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steveb8189
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Quote steveb8189 Replybullet Posted: 14áJaná2018 at 7:00pm
Hope you got on ok Graham. The reason for my question was that I was under the impression most EAC originated near the GEJ so it would make sense to me (in my laymans mind) to start there.
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GrahamB
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Quote GrahamB Replybullet Posted: 16áJaná2018 at 9:40am
So, RFA III went ahead as planned on Friday and acted as a salient reminder that Barretts isn't just asymptomatic - it's CONTRA-symptomatic!

Procedure itself was pretty much as usual. Handled quickly and efficiently by Frimley Park and Parkside. Sedation as just as effective as usual.

Had a chat with my consultant pre and post procuedure. Asked specifically around SteveB's question. They treat the whole segment every time. I think the progressive circumfrential effect may be becuase the lower O has tighter, deeper epithelium and hence takes longer to eliminate (any thoughts Chris?).

On a more general front Dr W warned me that it may be that my segement may not have reduced significantly since the last session in September as, with longer segments, the process often "stalls" around now on the treatment path. She also gave me a heads up that this time round she was going to use a HALO90 device, rather than the HALO360 used to date, to get more consistent contact with the O and that the HALO90 can cause a bit more discomfort.

Turns out she was 50% right! The treatment hadn't stalled - pre procedure the segment was assessed at C2M5 (from C4M7) but, boy, did she get the discomfort bit right!

Once I came round from the sedation I became, almost immeadiately, aware of a marked pain under my sternum. Painful enough to need some IV paracetamol while still in recovery.

I was very tired and remained so for the rest of the day. After I made it home (around 4:30) I went for a quick lie down that ended up taking me through to 8 am the following morning.

Saturday morning I made the mistake of assuming that everything would level itself out and, despite some fairly bad pain, set off to coach my boys football teams for 3 hours in the cold. Bad mistake. Pain got worse, I soldiered on, pain got worse, I ended up flaked out for most of the rest of the day.

I am now taking max pain relief and acid suppression and am having to take things more slowly on the diet progression.

Now to the contra-symptompatic bit. While the is the consistnet dull ache that I rememeber from my heartburn days the worst pain is when burping (which is quite often when post procedure and on effervescent paracetemol). The only logic I can find is that the pain is being cuased by the good, old fashioned reflux that has never stopped but has been modified by my PPIs. It seems that I am now losing my Barrett's "protection" from that reflux as we ablate it away and am now suffering from the effects of (I would assume mainly bile based) reflux hitting the ablated areas.

I suspect this comes in to the "win some, lose some" category. My segement is reducing (YEAH) but my reflux is still there and will need better management (BOO).

On another note, ended up talking to a colleague about why I wasn't at work last Friday and it turns out his mum has persistent, painful reflux. I gave him a quick run down and he is now going to suggest that his mum sees he GP about it rather than just going to the chemist. We, the lucky(ish) few, need to make sure we get the burn message out there.

Hopefully things will start to settle soon. Next session will be April. May need one or two after that before going on to ph manometry and perhaps (looking more likely) fundo late this year.

Well done for getting to the end but writting things down here does help with the thinking....

Graham
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chrisrob
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Quote chrisrob Replybullet Posted: 16áJaná2018 at 12:42pm
Thanks for update Graham. Hopefully the throat is calming down now and the Barrett's will soon be eradicated.
Meanwhile, just be extra vigilant regarding acid suppression and good luck for possibility of fundo.
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steveb8189
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Quote steveb8189 Replybullet Posted: 16áJaná2018 at 6:34pm
C2M5 sounds like some great progress. Surely it is still early days to read too much into the pain being caused by reflux? I've seen some post RFA photos and there is an awful lot of healing that needs to happen after the treatment. Remember the normal esophageal lining that should grow back will provide some protection - just not as much as the Barrett's cells.

Fingers crossed the burn will be gone in a couple of weeks. I would consider the pain to be a good thing as it means they burnt the heck out of the bad cells!
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GrahamB
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Quote GrahamB Replybullet Posted: Yesterday at 7:14pm
So... appears we may not have reflux but a stricture instead!

Managed to also contract tonsillitis during the week which was masking some of the symptoms but my specialist seems to be reasonably convinced based on a telephone conversation!

Back in on Thursday for an OGD with potential dilation. On Complan as my primary diet until then....

Ho, hum.


Edited by GrahamB - Yesterday at 7:14pm
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