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DerekL
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Quote DerekL Replybullet Posted: 29†Mar†2009 at 12:43pm
Hi Chris

Re yours 8.55am to-day.Being away from home the other day and having for gotten I was having problems so went to the local Boots is search of  some Rs or Gs and spoke to the dispenser who suggested Omeprazole 10mg tablets.I was quite surprised that they were sold over the counter and even more surprised when I had to pay just under £8.00 for 10 tablets.Being over 60 no longer pay for medication....will remember to pack my PPIs next time.

Hope to meet some of you on 24th April in London.

Bset wishes Derek
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chrisrob
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Quote chrisrob Replybullet Posted: 29†Mar†2009 at 1:28pm
That's good, Derek. I must have missed that bit of information. Mind you it would be expensive is, as I was, you are on 80mg a day.
I don't pay for meds, either (being over 60 myself) but am now totally off PPIs, domperidone, colofac and iron.

See you on 24th April.

Chris
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DebbieEvo
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Quote DebbieEvo Replybullet Posted: 29†Mar†2009 at 5:22pm
Hi Chris,
 
Thanks for the translation!
 
I'm glad to hear your op was so successful, when I did query this with my doc he just said it wouldn't help me - not exactly sure why? You must be so relieved to finally feel well again.
 
You are a bottom- less pit of information - keep it going!
 
Best wishes
 
Debbie
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GreenEyedMarine
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Quote GreenEyedMarine Replybullet Posted: 29†Mar†2009 at 6:37pm

Chris, thanks for the translation.  It helps that y'all are tolerant of the communication gap across the pond.

I went back to prilosec (omparezole) last night at 20mg per dose twice a day.  The numbness in my hands went away as of this morning, so I'm going to switch off the nexium (eomparzole).
 
Michelle
 
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Suzy
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Quote Suzy Replybullet Posted: 30†Mar†2009 at 3:52pm
There seems to be quite a few newbies lately, so welcome everyone.  I just want to offer a little encouragement to all of you.  No one told me things could get better and it would have been a lot less distressing for me at the time if they had.  In Oct. 2008 I was told I had Barrett's, 12cm grade C oesophagitis, anaemia and a multi nodular goitre in my thyroid. I was put on 3 iron tablets a day, and 20mg omeprazole twice a day.  I was exhausted at the time and couldn't eat much. I abandoned trying to eat normally and lived on home-made soup of every description and no fat yoghurts for a few months and drank nothing but water.  Had 'top' and 'tail' scopes done again in Dec. 2008 and in only two months the oesophagitis was down to just 2cm and my Barrett'd cells seem to be regressing.  It's now six months on and I can eat almost normally, although now have a complete intolerance to meat.I'm down to 1 iron tablet a day and am gradually getting energy levels back.  So hopefully you too will begin to feel better as the drugs begin to work. 
 
I was inerested to see you have thyroid problems Debbie.  Have you asked if this is
at all related to your other problems?  My thyroid functions properly but I now have three
growths in it  that they tell me are nothing to do with the other problems it was just a
coincidence they appeared at the same time as the Barrett's.  I can't prove otherwise
but feel the two are somehow connected.  They are reluctant to remove my thyroid as
it is functioning properly.  They've decided to just monitor this for a while but it has caused extra pressure in my neck, glands and head generally.Feels like I'm being choked.  Recently had a haemorrage in my eye and again I think this has something to do with the extra pressure but am told "it's just a coincidence".  Hmm..... I'm not so sure. 
 
All the best to everyone - keep smiling   Smile
 
Suzy
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chrisrob
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Quote chrisrob Replybullet Posted: 01†Apr†2009 at 8:46am
Hi Suzy,

That is really good news and hopeful encouragement to us all.
Hope you will now go from strength to strength and your other problems can be sorted.

All the best
Chris
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Moggs
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Quote Moggs Replybullet Posted: 02†Apr†2009 at 6:23pm
Hi Chris
 
    Agree only small doses of alcohol !  I normally only have one or 2 glasses of wine - depending on strength
    or one liquer but last night I went a bit mad!! The wine, a beautiful Merlot , had at least 3 glasses this
    took  my inhibitions away and I followed it with 2 Amerettos!!  (Can't even spell it this morning!!)
 
   They were nice going down but URGG coming back up with my dinner. I thought I'd best not take my 
   sleeping pill/diazapam after that lot either;  so felt a bit low this morning. Still only my self to blame that's 
   taught me a lesson till next time!!
 
   Feel better now & it was 1st time in nearly 9 years I'd drunk that much so I can be forgiven & hope my 
    stomach forgives me too !!!.
 
     Moggs
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Cinders
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Quote Cinders Replybullet Posted: 05†Apr†2009 at 7:33pm
I was diagnosed almost 9 years ago, just after my father died I inherited some money and since the local NHS Dr said another endescope was not financially viable by the local authority I paid to have one done privately, as I was sure my long time problem with indegestion was becoming very difficult to live with.  The Losec I was given at that time helped a lot, but was costly to my G P and so they were reluctant to repeat the prescription regularly.
The downside to having the procedure done privately was that the Dr phoned ten days or so afterwards at nine in the evening when I was alone, sitting in front of the TV and he informed me I had Barretts!!! I was very shocked, and upset.  My only meeting with a consultant took place two weeks after my mother died, exactly nine months after my father, and since I had fallen down stairs at my mothers funeral, I was in a wheelchair at the time, and an emotional wreck.  His bedside manner was terrible, and since I was unable to walk at the time, I had been reading too much on the internet, he became quite rude, and informed me that I probably knew more about the condition than he did.
I have had three yearly endospocies since then, with vague reports from my GP that it is getting worse.......no consultation with a consultant, and I was resigned to the fact that I would be lucky to reach 60!!! Then I saw the HALO procedure on line and came across this blog........I have been so elated at this, you have all given me so much hope that I might live to see my 5 grandchildren grow up after all......thank you all!!!!!
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chrisrob
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Quote chrisrob Replybullet Posted: 06†Apr†2009 at 8:51am
Hello Cinders,

Sounds as if you've had a very rough time one way and another and I'm glad you've found us now.

Welcome.

I thought the NICE guidelines were intended to overcome the postcode lottery.
I know Losec (omeprazole) and other PPIs can be expensive but most medicines are and it's no excuse for you not to have them.
I know some years ago my GP at the time was called to account by his practice manager over the "excessive" rate of prescribing of PPIs for me. He tried me on a lower dose for a while but soon proved he was right and the practice accepted I needed them.
My present GP (a new practice since I moved a few years ago) was quite happy to increase my dose to the maximum (even though it raised some questions at the pharmacy).

Are there other GPs at your practice you could have an appointment with that may have a better knowledge of reflux disorders? I know, with so much to learn, doctors cannot be experts in everything, but with such a high proportion of the population experiencing reflux problems, they need to at least gain some familiarity.
You should ask your GP if you can have a referal to see a GI specialist.
Alternatively, could you pay for a private consultation with another specialist.

Barrett's is defeinitely not a death sentence: it is only a small proportion that will go on to develop cancer. Regular screening should find mucosal dysplastic changes before it reached that point and ablative therapy should be offered to remove that risk.

Do you remember what you were told about the state of your Barrett's following your last gastroscopy? How long ago was it? If it was more than 3 years ago, badger your GP to send you for another. Hopefully, you are still on omeprazole (or another PPI)? If not, why not and if so how much and is it keeping the symptoms under control?

I don't know how old you are now (and wouldn't presume to ask a lady her age) but, other factors aside, there should be no reason why you shouldn't live to see your grandchildren grow up.

Please ask us any questions you have. We may not know the answer but there are a number of us who have been through similar experiences who can tell you how they have coped.

All the best

Chris
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Cinders
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Quote Cinders Replybullet Posted: 06†Apr†2009 at 11:00pm
Dear Chrisrob, thank you so mu,ch for your reply.
I live at the end of a peninsula, so have no choice of
doctor, but they now realise the full dosage of drugs
is in order, so no more problems there. The hospital
where I have the examinations is 90 miles away, and
I had the last one five weeks ago.  I was told over the
phone that it was not cancerous, but I have now decided
to make another appointment with the GP and ask for
more details.
I am 58 years old and six months ago realised that it is
up to me to sort out my health, and have lost a stone in
weight, and go to a ladies gym 20 miles away at least once
a week, so I do feel fitter than I have in years, and my
indegestion is more controlled also.
Thanks again for your prompt reply
I am so delighted that I have found this site,
great to be able to learn for other people in the same boat!!!
 
A much happier, Cinders!!!
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