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chrisrob
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Quote chrisrob Replybullet Posted: 20áMará2009 at 11:45am
Hi Ozzy,

I was on PPIs for 15 years. Initially I was on smaller doses and latterly on maximum doses. I'd tried Ranitidine without success. Omeprazole, Pantoprazole and Lansoprazole I used at various times. All seemed much the same.
I did find I was able to get the balance right to stop the severe heartburn and bile reflux but other symptoms (particularly the reflux cough) were only suppressed on maximum dosage which then gives rise to side effects.

I was offered the fundo wrap in 1999 but then it would have been open surgery that sounded so horrific, I declined.
I have just had the laparoscopic fundoplication. It took 2 years from when I plucked up courage to ask my GP whether I could go for it to having it done.
So far. So good.

I had the operation on Monday and came home on Tuesday. I had read lots of posts of people who had the op http://www.geocities.com/lapro_fundo/ (warning there are a few horro stories here) and was wary about  what could go wrong and, if I'm honest, scared of the pain I might feel afterwards.

Of course it's early days. Just 4 days ago at this time I was under the knife, but so far everything seems great. Pain is hardly noticable - for a couple of days I used paracetamol. I haven't used any antacids. I can drink anything by having repeated small sips and eat "sloppy" food. I get full up almost immediately and a little discomfort wanting to burp and not quite managing it - but eventually a small amount works its way up and the pressure is relieved. I'm up and about and feeling fine. Will take a little while to get reallly fit again but so far I would recommend it to anybody.

Chris
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Ozzy
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Quote Ozzy Replybullet Posted: 20áMará2009 at 12:23pm
Chris good to hear the op went well for you. You must be really pleased.
My Doctor and family talked me out of the OP. Seem to have times when drugs don`t seem to work. I do believe that stress plays a big part though. When on holiday never suffer as i do when i`m working .
 Ozzy.
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lizthebob
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Quote lizthebob Replybullet Posted: 20áMará2009 at 6:49pm

Hi Michelle

I was on 3 x 300mg of ferrous gluconate a day. It took a while to get the type of iron and the dosage right for me. Even then it didn't do a lot of good for my bowels and my patient GP had to gently persuade me to keep taking them.

He also suggested taking them as far away in time fromt the PPIs and to take them with fresh orange juice. Unfortunately the juice gave me horrendous heartburn so had to give up on that one. Think the point was that the body is better at absorbing iron when it has vitamin C.
Wouldn't worry too much but it is certainly worth having regular blood checks done to keep an eye on it. I am currently just taking 300mg a day now to try and keep it ticking over.
Hope that helps
Liz
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Quote DebbieEvo Replybullet Posted: 22áMará2009 at 12:42pm
Hi Everyone,
 
Thank you so much for all the replies, good to know that I am not alone - I feel better already! Interesting to hear about the calcium problem also, why do doctors not make you aware of these problems when they prescribe?!
Keep in touch
 
DebbieSmile
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Mark51
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Quote Mark51 Replybullet Posted: 28áMará2009 at 1:41pm
Hi Debbie and thank you,
 
My name is Mark from Manchester. I joined PROBE today and yours is the first posting I have looked at...so hello!
 
I can really understand how you feel. I went to see my GP on the 14th of January, having experienced chest pains and having vomited the night before.
 
He got me in for an Endoscopy which showed that I had Severe Oesophagitis and a "bad case" of Barretts. I knew already that I had a Hiatus Hernia, having had this detected when I was about 30 (20years ago).
 
Since the hernia was first discovered I have been on varying doses of acid inhibiting drugs...which certainly got rid of the discomfort I had previously felt due to acid reflux.
 
In a nut shell I didnt have a clue what Barretts was. I went back on Wednesday last for a second Endoscopy..by which time the inflamation caused by the Oesophagitis had gone and so they could have a better look.
 
Having learned a little about Barretts. I asked a few questions prior to the tube going down.
 
I also explained that I had totally cut out alcohol and anything which seemed to upset my digestive system in any way. From the 14th of January my GP had increased my Lanzop dose from 30mg to 60mg per day (it only went up to 30mg last summer from 15 mgs). 
 
Anyway one of the questions I asked was what was the length the area effected by Barretts. I was told that It was 120mm..which I believe is a bad case.
 
I asked other questions about exploring the possibility of having and opp on the Hiatus Hernia etc to help deal with future acid reflux.
 
They took pictures of the Barretts area and above and showed them to me..explaining that the area above the Barretts (upto 200mm) was unusual and needed further investigation. They took samples and I am now waiting for the results when I visit my GP on the 9th of April. They also are referring me to a specialist.
 
I wanted to thank you for your posting and in particular what you said about feeling tired and unwell. I have felt the same despite living a very healthy lifestyle.
 
I have found that I get tired easily, so what you put about the medication maybe affecting iron absorption could explain some of that tiredness.
It will ceratinly prompt me to raise the question with my GP.
 
Also having read a little more now I am wondering if the continued (although reduced pain) that I feel in my chest  whilst eating could be due to Barretts Ulcers..who knows.
 
All the best Mark
 
 
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DebbieEvo
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Quote DebbieEvo Replybullet Posted: 28áMará2009 at 7:10pm

Hi Mark,

I'm not far from you over in not so sunny Liverpool!  I've done quite a lot of reading over the last few days regarding the possible side effects of PPI's and despite what the docs say I feel a lot of us Barretts sufferers, may be suffering more as a result of long term use of medication than the actual disease itself!
Next time I go to see my consultant I may enquire about other options although surgery terrifies me....then again... putting up with the way I feel much longer scares me even more. I indugled in a much needed bottle of beer last night (the first in a while) and felt dreadful this morning - I think my party days are well and truly over boo hoo!
 
Take care hopes all goes well
Debbie
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DebbieEvo
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Quote DebbieEvo Replybullet Posted: 28áMará2009 at 7:18pm
Hi Michelle,
 
Good to hear from you - our stories seem very similar. Was interested to know what dose PPI'S you are on and for how long?
 
It's saturday night would love to be able to have a few glasses of wine and chill out like I used to - but no  such luck as I know I would suffer - are you still able to enjoy the odd tipple? I hope if and when I get my symptoms sorted life may get a little bit back to normal.
 
Time to sort the kids out (aged 3 and 5) so a big handful at the mo!
 
Best wishes
Debbie  
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GreenEyedMarine
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Quote GreenEyedMarine Replybullet Posted: 29áMará2009 at 12:22am

Hi Debbie!

I started taking Nexium (Eomprazole) 20mg twice a day, but noticed that my hands were tingling in the morning and acne on my face.  I just went back to Prilosec (Omeprazole) 20 mg twice a day to see if I notice a difference.  I was on the Prilosec since 2003, but was only "as needed."  I didn't start the twice a day dosage until last August, when I was diagnosed.
 
I've noticed that the meds we take in the U.S. are different from the U.K.  I wonder if they are the same thing, just different marketing?
 
I have a drink every now and then, however I also pay dearly after.  I've decided to stop all together it's just not worth the side effect.  Of course now that I have quit drinking and smoking I am at a loss of what to do...so I took up yard work.  I also find myself keeping on top of the laundry (my son -10- asked if I could wait until after his shower before I snatch up his dirty clothes from the bathroom floor and start the wash) and other household chores.
 
My doctor told me that it's very rare to have a woman in her 40s with BE.  Normally it's men over 50, but I guess it's becoming more common place.
 
Wow..a 3 and 5 year old?  Sounds like a lot of work.  :D  However, being a yankee and all, please tell me what a "mo" is. 
 
Michelle
 
Michelle
  
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chrisrob
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Quote chrisrob Replybullet Posted: 29áMará2009 at 8:55am
Hi Mark,

Welcome and glad you found us.

It certainly sounds you're having a rough time of this. Hope you get to see a specialist soon and he sorts you out quickly.
120mm does sound a lot - about 4 times what is typical in acute cases.

The chest pain is difficult to pinpoint. I was sent for treadmill ECGs to ensure mine wasn't my heart (which I was relieved to find seemed quite healthy). Still don't know how much of that was due to reflux and how much due to PPI side effects.

I have written elsewhere in this forum on many occasions about adverse side effects of the medication. The higher the dose, the longer we're on them, the more we notice them. They were never originally intended to be used for periods more than a couple of months.
Hope you get the op soon, if that's what you want, and it is as successful as mine.

Debbie, I understand your fear of surgery. It stopped me when I was offered it first ten years ago. However, less than 2 weeks after my lap fundo I feel more alive than I have done for many years and realise there was nothing to be frightened of. I don't drink much but nothing is barred to me now. (Just can only manage short measures, taken slowly.)

Michelle, Most drugs in USA and UK have different brand names, however the drugs are the same: Omeprazole, Lansoprazole, Pantoprazole and Esomeprazole. (I believe there is also an Over-The-Counter version of omeprazole in the states of a lower strength? It'sonly available on prescription still over here.)

(And "mo" is short for moment. "At the mo" = now. Two nations divided by a single langauage indeed.)
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chrisrob
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Quote chrisrob Replybullet Posted: 29áMará2009 at 9:07am
Not wishing to be alarmist, but just found this item discussing the over use of PPI drugs:
http://www.buzzle.com/editorials/7-6-2006-101463.asp
which supports everything I've been saying.

However, read it with caution. It is actually advertising material attempting to sell natural remedies. Whereas it is tempting to think we can all get rid of our problems by changing our lifestyle and eating healthily, we know it can be more than that.
The healthiest diet cannot repair a hiatus hernia.
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