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jcombs99
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Quote jcombs99 Replybullet Posted: 11†Apr†2015 at 6:29pm
B
You don't want Halo because you'll need 2 and 99% of the people can't afford it .PAY for a scope EVERY 12 months then NHS does the 2st year . IF it goes to LGD or HGD they will Halo it.
I paid $600 per Halo here OR $300 per scope .

Have a NICE(FR.)Day

HGD JEFF

Hi Teach
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Sandra W
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Quote Sandra W Replybullet Posted: 12†Apr†2015 at 2:13pm
Hi Bluetobits,
 
I had a 12cm HALO treatment for squamous cell dysplasia in March 2012, followed by a small EMR in 2013 to remove a residual area of abnormal cells.  Despite the waiting list horror stories that circulate, I was offered treatment session within 6 weeks of the condition being confirmed by biopsies.
 
For most scopes I have 3 or 4mg Midazolam plus 100mcg Fentanyl (opioid), which puts me out for the entire scope.  In fact, I'm usually in the land of nod before the injection's finished!  For the HALO treatment I was given 7mg Midazolam plus 125 mcg Fentanyl, and the consultant said he could give me a top-up injection during the procedure if necessary.
 
I slept for a total of 4 hours when I had the HALO, then had to wait another 4 hours before having anything by mouth.  Yes, I did have a lot of pain in my chest afterwards,  but Codeine and Sucralfate helped with that. 
 
Although many people do manage to start a soft diet within a day or two, I had so much pain I had to stick to lukewarm milky drinks for about 10 days afterwards.  When I sent a message about this to my consultant, he replied saying it was nothing to worry about and that very large ablations often do take longer to settle down.
 
Within 4 weeks I was back to a normal diet, and my follow-up scope confirmed that the treatment had worked well.  My consultant also explained that it is very common for people to need one or two follow-up treatments, although these tend to be much smaller than the first ablation. 
 
I was scoped roughly every 3 months over the following year, and a small residual area was detected in May 2013.  This was removed with EMR.  I got all clear at my last scope in June 2014, and I will be going back soon for my annual follow-up.
 
If you need HALO you willl be offered it on the NHS.  If you don't need it straight away, just make sure you take your meds and get follow-up scopes to monitor your condition so that treatment can be given at any time if necessary.
 
If you are offered HALO on the NHS, then go for it and get it done as soon as you can.
 
Good luck!
 
Sandra.
 
 
 
 


Edited by Sandra W - 12†Apr†2015 at 2:15pm
E-mail: swilliams888@hotmail.co.uk
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bluetobits
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Quote bluetobits Replybullet Posted: 16†Apr†2015 at 12:15pm
Thanks Teacher & Sandra W for your responses.'

'squamous cell dysplasia'? EMR?

jcombs99

The last time I checked some three years ago the complete HALO treatment in the private sector (2-3 treatments + follow up scopes)was circa £5000 (8000$) so getting it free on the NHS is a blessing

and a scope is £1200 (1500$)

I suppose on reflection, your suggestion to have a private scope every other year such that you are scoped every year (one free on the NHS and the next one paid for)
is not a bad idea I shall give that serious thought.

thanks
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jcombs99
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Quote jcombs99 Replybullet Posted: 16†Apr†2015 at 2:26pm
B
I bet that $1500 could be had $1000 as in CASH . Remember even if you did once to check up on your current doctor that would give me peace of mind . Tom Hanks wife Rita Wilson went to doctor he TOAD her no big deal she got second opinion CANCER then a few more opinions then they cut it out .

There a couple of clinics here that only take cash and their like 1/3 the cost . Ins. companies are like the Gov wasteful and lots of Red tape.
Good Luck

CHEERs

Edited by jcombs99 - 16†Apr†2015 at 2:29pm
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Sandra W
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Quote Sandra W Replybullet Posted: 16†Apr†2015 at 5:13pm
Hi Bluetobits,
 
Yes, I had squamous cell dysplasia.  It's very different from Barrett's and is not necessarily caused by reflux.  In Barrett's, the normal oesophageal mucosa (squamous cells) is replaced by columnar mucosa (stomach / intestinal cells), and this change is caused by reflux.  In scd the oesophageal squamous cells develop pre-cancerous changes (dysplasia), and the condtion can progress to squamous cell cancer if not treated.
 
My consultant explained that scd carries a very high risk of development into cancer, much higher than normally happens with Barrett's.  He explained that scd risk is currently estimated at 35% over 3 years for low grade dysplasia and that this increases to at least 65% over 3 years if the dysplasia progresses to high grade.  For this reason he recommended that I have HALO to remove the abnormal cells to prevent them progresssing any further.
 
EMR is endoscopic mucosal resection.  My consultant explained that EMR can be used to remove abnormal mucosa if the area to be treated is small (about 2.5 cm or less), but HALO is required for larger areas. 
 
Although it's possible to have HALO 90 (smaller electrode) to remove small problem areas, since HALO appointment slots are usually limited it makes sensee to keep those slots for cases where (such as EMR) are not suitable.
 
I'm now booked to ahve my next follow-up scope on 29 June this year, and I'm really looking forward to getting an update on my progress.  Although I got all clear year, if the problem recurs I will be given more HALO or EMR depending on the size of the area(s) to be treated.
 
I'm very pleased I had the HALO, also the EMR.  Yes, I did have a lot of pain after HALO but I reckon it was worth it to get rid of the risk.  I'm also very pleased that I'm still having follow-ups so that any future problems can be identified and treated before they get out of hand.
 
All the best,
 
Sandra.
 
 
E-mail: swilliams888@hotmail.co.uk
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bluetobits
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Quote bluetobits Replybullet Posted: 11†May†2015 at 12:48pm
6 weeks now and no results from the hospital regarding biopsies - good news or bad?
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jcombs99
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Quote jcombs99 Replybullet Posted: 11†May†2015 at 12:50pm
CALL or Email
Nothing like a little Reflux from worry maybe if they cut the NHS budget that will help things

Edited by jcombs99 - 11†May†2015 at 1:01pm
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chrisrob
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Quote chrisrob Replybullet Posted: 11†May†2015 at 12:55pm
Path labs get quite busy at times. And it takes a while to peruse all the biopsies. They have to be set in petroleum wax and sliced into thin slices to be examined under a microscope.

If there was any suggestion of malignancy, the slides are prioritised to get the results quicker.

If you have had to wait a while, it's usually good news there was nothing suspect, but check your GP surgery hasn't received the results and not caught up on their paperwork and informed you and phone the endoscopy secretary if you receive no joy.
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bluetobits
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Quote bluetobits Replybullet Posted: 11†May†2015 at 4:50pm
I was told two weeks at the conclusion of my scope in endoscopy - GP has received nothing - this happened last time - two years ago If I hadn't phoned the hospital I doubt I would have heard one way or another!!!!!
surely my hospital specialist would get the results first and make an appointment to see me if anything was untoward such that we could plan the next move?
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jcombs99
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Quote jcombs99 Replybullet Posted: 11†May†2015 at 4:58pm
They forgot to call me and tell me I had HGD so ASK them.
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