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bluetobits
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Quote bluetobits Replybullet Topic: HALO Treatment
    Posted: 16áMará2015 at 1:59pm
My third scope due in two weeks - time to worry again
no dysplasia last time and no indigestion symptoms in two years as a result of taking PPI's

If I have any change then would consider paying private for halo treatment - even if just LGD found

cancer research site is not as positive about this treatment as some posts I have read regarding light sensitivity afterwards - how problematic is this?
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chrisrob
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Quote chrisrob Replybullet Posted: 16áMará2015 at 3:44pm
All the best for your next scope. hopefully. no changes will be seen. Mine hasn't changed over 21 years.

If LGD is found, you may now get RFA on NHS now. (We're not supposed to call it HALO now as that was trademarked by another company for some different medical equiment.)

I'm not sure which CRUK page you looked at an wonder whether you were looking at the PDT page rather than RFA?

Photo Dynamic Therapy is seldom used now there are better treatment options. It used drugs that made your cells light sensitive and a laser then burned away the Barrett's cells. RFA doesn't make your cells light sensitive. It burns away the Barrett's cells.

It is described here.
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bluetobits
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Quote bluetobits Replybullet Posted: 16áMará2015 at 4:27pm
Thanks For that Chrisrob

Do you know anyone who has had this procedure?
Is it painful? Are you treated under sedation?

this will be my third time without sedation - it's unpleasant but not painful and only lasts about 20 mins.
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Quote chrisrob Replybullet Posted: 16áMará2015 at 4:54pm
I've had plenty of scopes and sedation has no effect on me. It is uncomfortable but doesn't take long.

I haven't had HALo though there are a number on this forum who have. I expect Jeff will chip in soon.
I believe it's similar to being scoped except it takes longer and the gastroenterologist who performs most of the treatments at our hospital says he mixes an opioid into the sedative to make it far more comfortable for the patient who probably doesn't know a thing as it happens.
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jcombs99
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Quote jcombs99 Replybullet Posted: 17áMará2015 at 1:53am
blue
    If you have LGD or HGD @ the scope get it done NOW !!! I would Halo just barretts because over the long its cheaper to be done with it then watch it .The NHS does what it wants and I do what I want. It's no big deal Halo see what the scope shows . Take your PPI's and watch your diet while trying to look like a PENCIL slim is always better.
   Blue make sure you live a perfect life for the next 2 weeks so the Doc can get a GOOD LOOK at an O that's not inflamed which would be a total waste of time for you both .
I'm on Shark watch overlooking Kona Hi. Beach . I hope they don't show up while I'm drinking my Gin and Toni would be a bit rough for them.

CHEERs

HGD Jeff   

Edited by jcombs99 - 17áMará2015 at 2:10am
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bluetobits
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Quote bluetobits Replybullet Posted: 17áMará2015 at 7:50am
28 years ago I had my first Scope with no sedative sat vertically upright, head back in a chair with the scope inserted straight down by the specialist stood on a raised platform to give him access - quite unpleasant - think the camera had previously been used by the BBC outside broadcast team!!!!!!
Diagnosis sliding HH ?

10 years ago had a second scope under sedation laid horizontally never felt a thing and slept for two hours after - Diagnosis the same with no Barretts but placed on PPI's
6 years ago third scope Barretts which raises the following issues with me:-
1. Taking PPI's did not prevent Barretts
2. Now I've got it how will PPI's stop it getting worse?
3. If I have the old HALO treatment will Barretts not return as the route cause is still there (HH) and the PPI's do not prevent it in my case?
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jcombs99
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Quote jcombs99 Replybullet Posted: 17áMará2015 at 4:18pm
b
   PPI's are a very good thing or I would dead by now so take them @ the correct dose and time .The NHS is only going to do the tests they want and will make you wait . I had 3 tests in one day and knew I had a 4cm HH and weak LOS (valve) so BAD leaking plumbing.Had a fundo didn't work there will be no REfundo poor chance of it working .I've have been or talked to 14 doctors(Gi's , Surgeons never Gp's) about my case so learn to be wise about your case because 2 cases aren't a like . Had Halo 5x over 7 years IT came back and will come back again .But you reset the barretts Data you start from day one with normal tissue. That's why Halo is great and no one gets that concept. Lets hope your doctor doesn't put the scope through the wall of the O my doc has never done that .Remember unlike the NHS me and my doc think size doesn't matter . He has seen cancer in 1/4 of CM(speck) of barretts.
I never worry about barretts ( don't have it) I get scoped every 6 months .
Wait for the Scope .
HGD JEFF
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Quote chrisrob Replybullet Posted: 18áMará2015 at 8:25am
Every single mutated Barrett's metaplastic cell has the propensity to mutate further to dysplasia and beyond.
The more metaplastic cells you have (ie the longer your Barrett's), the greater the chances one of them will start progressing.

But it must be stressed the chances are extremely small. In most of us, progression will probably never occur. (I've had my 3cm for 21 years at least without signs of progression.)

NHS guidelines provide for RFA if any signs of dysplasia are seen (LGD or HGD) which is considered early enough intervention.
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Quote chrisrob Replybullet Posted: 18áMará2015 at 8:32am
Hi Blue,

You must have had one of the old style endoscopies. Sounds horrendous.
They were first used in China when chicken farmers wanted to see why their hens weren't feeding properly. They used a straw to look down inserted down the poor hen's gullet.
This was then considered for use on people who were having problems and a rigid straight tube the thickness of a broom handle was pushed down the throat. Sounds absolutely ghastly, don't know how anyone could cope with that.
Fortunately technology has advanced and the latest scopes are engineering marvels.
The charity I chair is presently raising funds to buy one that is just 5mm wide but can do everything the normal thickness scopes can. You can see the details of it here.
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bluetobits
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Quote bluetobits Replybullet Posted: 18áMará2015 at 10:43am
So just to recap

PPI's do not prevent Barretts nor do they stop it's progression they just stop your heartburn.

HALO brings you back to square one at phenomenal cost privately - lengthy wait on the NHS only for it to return as the source of the trouble hasn't been /can't be removed

Seems to me that all monies should be channelled into fining a stomach valve replacement/repair

Not much hope then So it's a lifetime of uncomfortable Scopes, biopsies, anxious waits and probably Halo 'repair' treatments.
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